In September I was commissioned by the Muscular Dystrophy Campaign to Document their recent trip to the Scottish Parliament in Edinburgh.Pictured: Families and MSPs at Scottish Lobby in September 2009
Deputy First Minister, Nicola Sturgeon MSP, yesterday evening pledged that people with muscle disease in Scotland will receive the care support that they need after announcing a thorough review of neuromuscular services.
Campaigners had called for an urgent review of health and social care services.
The Muscular Dystrophy Campaign's Building on the Foundations in Scotland report revealed that the 5,500 adults and children living with muscle disease in Scotland face a ‘postcode lottery' of specialist services.
The announcement of a review was made as families and supporters gathered at a lobby yesterday at the Scottish Parliament in Edinburgh. One of the crucial issues raised was the fact that there are currently only two part-time Muscular Dystrophy Care Advisors (RCAs), which is inadequate to care for the 5,500 people with muscular dystrophy in Scotland. The Regional Care Advisor posts are a vital resource for coordinating services and providing support, especially during the transition to adulthood.
Links..Major neuromuscular services review in Scotland announced
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